David

From North WestU.K.

Pictured from left to right it's Vicky (oldest daughter), me, baby Katie, Sheila, Lisa, (youngest daughter and Katie's mum).
Daughter Vicky's Wedding, July 3

 
The Journey of a Lifetime: From the Peak of Fitness to Parkinsons's in Six Months
Look Up, The Sun is Shining
 
I Stand Alone
 
Martha's Mark- Was Martha a Witch? Read this story to find out!


 The Journey of a Lifetime

From The Peak of Fitness to Parkinson's in Six Months 

The first 2 months

'Not far to go now' I think to myself, as my legs pound the road, running mile after mile. 'You've already done the hard part, the first ten miles are always the worst' I tell myself. Sometimes I even amaze myself at just how good I am at this running game. Like a robot, I just keep going. 48 years old and I can run the legs off any 18 year old.

Oh no, I fall again; my hands and knees skinned, I drag myself back to my feet. Picking the stones out of my skin, trying to look unshaken I hobble off home. I'm getting really careless, I must pay more attention. 'What on earth have you done' my wife asks as I walk in the house panting and blooded. 'Ridiculous' she says, and tells me I can't go on falling every day. 'You are going to the Dr'. Reluctantly I agree.

It's Christmas week, so I arrange an appointment with my GP for after the New Year. So, in early January I see my GP. After I finish telling him about my carelessness and how I keep falling. He said to me 'Do you like music' 'yes' I said. 'OK just tap out a rhythm on my desk with both hands' he said. 'I did, or rather I didn't, I just couldn't get both hands to work together. No matter how hard I tried they just didn't keep the beat.

After a few more tests he declared 'Your going to see a neurologist', but don't worry. 'That's easy to say' I told him. You see I have a Master in neuroscience, so I know what's what. I know what's wrong with me!, I've got a brain tumour; no I've had a stroke. What I didn't have wasn't worth having. By the time the letter came from the hospital I had every neurological ailment possible. I opened the letter and things just got worse, sixteen weeks before I even get an appointment. I couldn't bear the thought of waiting 5 or 6 months just to get seen, but that's the NHS for you, what could I do.

One day a week or so later another letter arrives, from a private hospital this time. It turns out my children had got the money together for me to see a private neurologist. I was so moved I could barely speak, I just cried and cried and cried, I couldn't stop crying. I had been feeling increasingly emotional, but lately all I did was cry, I'd cry watching the news or seeing an ambulance go by. (There must have been some one hurt you see).

I went to the hospital by myself, I wanted it that way, I'm brave aren't I, still a man. Twenty minutes after going into the neuro's office I'm finishing getting dressed. As I bend to tie my laces, he said to me, ' well David, there is no doubt you have Parkinson's disease'. It took me four or five minutes to get up from tying my laces, I was sobbing like a baby. 'Oh don't worry about the tears, that can be one of the symptoms', what a great comfort that was. 'I'll send a report to your GP. You can pay the nurse on the way out, good-bye' Bang, the office door shut behind me and I was alone with my Pd for the first time!

Months 3 and 4 to follow:

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 Look Up, The Sun is Shining

I'm tired of crowded street, of push and rush and hurry.

Time passes as strangers pass, with not a glance or care

And fast and faster walks, leaves all behind save failures memory

No rainbows end; no salvations from this thief of spirit

That with slightest touch does bow the strongest mettle


I'm tired of crowded street, of push and rush and hurry.

Longing for places that the turmoil brings forth not worry

Where winters gale strip not the warmth of my soul

To stand, eyes closed, and turn my face to springs warm breeze

As if caressed by natures breathe, and be absolved of this disease


I'm tired of crowded street, of push and rush and hurry.

And looking up do glimpse from hidden eyes, there seems

A calm appears amid the gathering storm, as if in dreams.

I am lifted from my woes; neither pill nor potion brings this end

O revelation, what joy, that any man be so lucky, to have a partner friend


 

I Stand Alone With My PD 

When I woke this morning the sun was shining through my window, I went over to look out. This truly is a beautiful place, a typical English country scene, lush green grass, woods and rolling hills. Almost perfect, except that here I am isolated from the main stream. In my community,

I stand alone with my PD.

 But today is Wednesday and it's when I go to the local town, do a little shopping, go to the library and usually I have lunch somewhere. I go alone because it's my way of defying the inevitable, of refusing to give in. My wife disapproves; I think she worries about my safety. She doesn't understand.

I stand alone with my PD.

As I wander around the shopping centre window-shopping, I keep my left hand in my pocket, it shakes a little, I look just like all the other people, I for a while feel normal. Then as I often do, I fall. I don't know why it happens; I'm just like a puppet with the strings cut on one side. As I lay on the floor folk just walk by,

I stand alone with my PD.

A kindly stranger stops to help, 'are you ok young man' she said. 'Could you just help me up' I reply. Well that's what my brain said, my mouth just slurred and dribbled. 'Disgusting' she said, 'not even lunch and drunk already'. As she walked away she gave me a sharp prod in the ribs with her walking stick.

I stand alone with my PD

By now I'm shaking real bad, can I get a cab to stop for me!

I stand alone with my PD.

Home at last, to the comfort of my wife's care. She looks after me so well. I don't know how I'd cope without her. She sees no PD. 'Why don't you log on and chat to your friends for a while', 'that always makes you feel better'. A few mouse clicks later and I'm in. Great there are 14 chatters, 'Hi all, how is everyone today', 'Hi Dave, I'm well thanks, how are you' one replies, 'same as ever Dave' said another. 'What you been up to' my friend asks, 'I went shopping and I fell'. 'Are you ok old friend' he says. 'I'm fine ' I reply.

I'm not alone with my PD

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